Family Resources

Resources for Parents

Supporting families with children who have celiac disease

In One Minute

Parenting a child with celiac disease brings unique challenges but is completely manageable. Children can thrive on a gluten-free diet with proper education and family support. Key areas include safe school lunches, educating caregivers, preventing cross-contamination at home, and helping your child develop confidence in managing their condition. Most children adapt quickly and lead normal, healthy lives.

Coeliac Disease in Children

Children with celiac disease can experience different symptoms than adults, including:

Common Symptoms

  • Chronic diarrhea or constipation
  • Abdominal pain and bloating
  • Failure to thrive or poor weight gain
  • Short stature or delayed puberty

Behavioral Signs

  • Irritability or mood changes
  • Fatigue or lack of energy
  • Difficulty concentrating
  • Dental enamel defects

Managing School Life

Communication with School

Work closely with teachers, cafeteria staff, and school nurses to ensure your child's safety:

  • Provide written information about celiac disease and dietary needs
  • Consider a 504 plan or IEP if needed for accommodations
  • Discuss safe snack options for classroom celebrations
  • Ensure understanding of cross-contamination risks

Lunch and Snacks

Safe lunch strategies:

  • Pack lunches from home in clearly labeled containers
  • Work with cafeteria to identify safe menu options if available
  • Keep emergency gluten-free snacks at school
  • Teach your child to read labels and ask questions

Creating a Safe Home Environment

Consider these options for your household:

Fully Gluten-Free Home

Eliminates all gluten products from the house. Safest option that prevents cross-contamination and helps the child feel "normal."

Mixed Kitchen

Keep some gluten products but implement strict protocols: separate prep areas, dedicated utensils, clear labeling, and thorough cleaning.

Supporting Your Child Emotionally

Help your child develop a healthy relationship with their diagnosis:

  • Normalize the condition: Help them understand they're not alone and many children have dietary restrictions
  • Empower with knowledge: Teach them about celiac disease in age-appropriate ways
  • Connect with others: Find support groups or camps for children with celiac disease
  • Focus on what they can eat: Explore delicious gluten-free options together